The UNAIDS is the first UN programme to have civil society formally represented on its governing body. The NGO Delegation to the UNAIDS Program Coordinating Board (PCB) has three roles:
- Participating objectively and independently in the workings and decision-making of the PCB
- Undertaking various forms of proactive and informed advocacy within the structures and processes of the PCB;
- Enhancing the transparency and accountability of relevant PCB decision-making and policy-setting, helping to meet requirements for upwards accountability (towards the PCB and other delegations) and downwards accountability (towards the people, communities and constituencies affected by HIV)
Civil Society Representation on the UNAIDS Programme Coordinating Board
- Musah El-nasoor Lumumba, Uganda Youth Coalition on Adolescent Sexual Reproductive Health Rights and HIV (CYSRA), Uganda
- Kene Esom, AMSHeR, South Africa
Asia and the Pacific
- Jeffry Acaba, Asia Pacific Network of Young Key Populations (Youth LEAD), Thailand
- Sonal Mehta, HIV Alliance India, India
- Ferenc Bagyinszky, AIDS Action Europe (AAE), Germany
- Vitalii Tkachuck, All Ukrainian Network of People Living with HIV, Ukraine
Latin America and the Caribbean
AMSHeR, South Africa Contact Kene Kene Esom is a Pan-African, social justice advocate. A lawyer by profession, Kene has worked on a number of social justice issues in Africa including asylum, refugees and forced migration, sexual and gender based violence in armed conflict, unaccompanied minors, access to health services for marginalised populations, human rights, sexual orientation and gender identity. Kene is currently the Executive Director the African Men for Sexual Health and Rights [AMSHeR] – an African continental coalition of MSM- and LGBTI-led organisations in Africa working to advance access to quality health service and promote non-discrimination, particularly based on sexual orientation and gender identity in Africa. AMSHeR, inter alia, supports policymakers, national institutions and community-based organisations to address social justice issues and the intersectionality of human rights, access to health services, gender and sexuality. Kene is a passionate advocate, trainer and conference speaker. He sits on a number of Board including the MenEngage Global Alliance, the International Steering Committee of the International Conference on AIDS and STIs in Africa [ICASA]. He is a member of the International AIDS Society, the Human Rights Institution of the International Bar Association and the African Regional Forum on HIV and the Law. Kene holds a Master of Law [LL.M] in human rights and democratisation and is working toward a doctoral degree in law at the University of Pretoria.
Uganda Youth Coalition on Adolescent Sexual Reproductive Health rights and HIV (CYSCRA), Uganda Contact Musah Musah Lumumba El-nasoor is a 29 year old youth leader and the national co-ordinator of Uganda Youth Coalition on Adolescent Sexual Reproductive Health Rights and HIV (CYSRA-Uganda), a coalition of 15 youth organizations and networks working together to sharpen adolescent components in national HIV and SRHR responses. He is also a member of the African Young Positives Network (AY+), The PACT and an Advisor on HIV Treatment and SRHR within the global network of young people living with HIV (Y+). Musah also serves as the African Youth advisor to the Point 7 delegation to the Global Fund (2014-2016) Musah holds a Bachelor degree in Clinical Medicine and Community Health, with a post graduate in Health Services Management. While in clinical practice, Musah was more inclined to HIV treatment, safe male circumcision, and contraception for young people.
Jeffry P. Acaba
Asia-Pacific Network of Young Key Populations (Youth LEAD), Thailand Contact Jeff Jeffry Acaba is a Filipino HIV and LGBT rights activist currently based in Bangkok, Thailand. He has a vast experience on HIV prevention, advocacy, strategic information and human rights and has worked as a facilitator and has led missions around the Philippines and in other countries in the region such as Bangladesh, Cambodia, Brunei Darussalam, Sri Lanka, and Thailand, to name a few. He started as a volunteer peer educator in 2007 and eventually worked with the principal recipient of the Global Fund to fight AIDS, Tuberculosis, and Malaria (GFATM) in the Philippines as a monitoring and evaluation coordinator. In 2010, he worked as a program coordinator for Action for Health Initiatives (ACHIEVE), expanding his advocacy to ensure access to justice of Filipinos living with HIV, and to assist local governments in passing sound and evidence-informed HIV-related policies. In 2010, along with other young people and youth activists from key populations in Asia Pacific, Jeff formed Youth LEAD to address the lack of space where young key populations in the region can come together and raise their voice. He has remained active with the network to promote and uphold the rights of young people from key populations in the regional and national level. Jeff obtained his Baccalaureate degree in Behavioral Sciences at the University of the Philippines in 2006 and has finished his course work for the Masters of Arts degree in Anthropology from the same university. He practices yoga and enjoys discovering the best milk tea and coffee the world has to offer while listening to indie pop and math rock in his free time. His favorite film is Bernal’s 1982 classic, Himala (Miracle). Youth LEAD started in 2010 as a pilot project of 7 Sisters (the Coalition of Asia-Pacific Networks on HIV and AIDS), with support from UNFPA, UNICEF, UNESCO and UNAIDS. With its Secretariat based in Bangkok, Thailand, Youth LEAD’s mission is to become a change catalyst to ensure that the rights of young people from key populations are recognized and respected and the impact of HIV and AIDS is mitigated through meaningful engagement in the HIV response. Youth LEAD has around 50 focal points from young people from key populations in 20 countries across the Asia Pacific. Its activities include regional and national advocacy in making policies more inclusive for young key populations, providing financial and technical support to youth-led organizations, capacity building, and building partnerships with communities and other stakeholders.
HIV Alliance India, India Contact Sonal Sonal grew to the level of Chief Executive of Alliance India in October 2016, after serving in capacity of Director Programmes and Policy in the organisation for nine years. With three decades of experience in sexual health and development, Sonal guides Alliance India’s mission of community action for ending AIDS with a lot of programmatic experience and management smartness. Before joining Alliance India, Sonal was Challenge Fund Manager in the DFID programme that led to many path breaking interventions in India including bringing oral substitution therapy for people who inject drugs. Prior to that she worked with organisations in India including NACO, Gujarat SACS, CHETNA and SEWA, as well as with the Pacific Institute of Women’s Health in Los Angeles, USA. Sonal has an MSW from the Faculty of Social Work, Vadodara, Gujarat. In a stride to continue learning, she completed her International Masters in Practicing Management from McGill and is pursuing Masters in Science in International Management from Lancaster, UK.
AIDS Action Europe, Germany Contact Ferenc Ferenc is an HIV and human rights activist from Hungary, currently based in Berlin, Germany. He started working in the field of HIV in 2007, first as a volunteer for a self-support group and a VCT campaign. In 2008 he joined the team of the Hungarian Civil Liberties Union (HCLU) where he was head of the HIV/AIDS Program for 8 years, also working on LGBT-issues. He also became very active at the European level; he was a member of the Steering Committee of AIDS Action Europe (AAE), a network of over 440 NGOs in Europe and Central Asia between 2009 and 2014. Ferenc currently works as project manager at AAE. He is working at the European advocacy level on projects on issues of affordability of medications, early diagnosis and treatment, and access to prevention, treatment and care programs focusing on key populations, in particular men who have sex with men (MSM) and migrants in irregular situations. He is a treatment advocate and member of the European AIDS Treatment Group (EATG) and he is one of the founders of the Network of Low HIV-Prevalence Countries in Central and Southeast Europe (NeLP). He is also a trainer and has delivered trainings on treatment literacy and advocacy, and mental health and HIV in Central and Southeast Europe.
All Ukrainian Network of People Living with HIV, Ukraine Contact Vitalii "The objectives and mission of the All Ukrainian Network of PLWH, the organization I will represent in the NGO Delegation to the PCB, most accurately reflect my personal and professional views on issues related to HIV in Ukraine and the region. I have personal experience of being an injecting drug user. I had been ill with hepatitis B/C, tuberculosis, and for 15 years I am living with HIV. I fully understand the degree of marginalization and exclusion of vulnerable groups, restrictions on rights and access to treatment and services. And I know very well the lack of effectiveness of national and regional measures of response to the epidemic in the case of exclusion of representatives of the Community in policy-making, program development, and implementation of effective models of care, etc. I genuinely believe that in the entire former Soviet Union territories and in Ukraine in particular, civil society, and especially the representatives of the various communities, is the driving force behind the response to the epidemic and a leader in the promotion of humanistic ideas and policies. For vulnerable groups, I will always act as the voice of communities and the person who defends their interests. The story of my life and all my diagnoses greatly motivate me to work and to make sure that we are heard at all levels."
Gestos, Brazil Contact Alessandra Alessandra Nilo holds a Bachelors degree in Journalism and Mass Communication, has a specialization in Communication and Health and holds post-graduation studies on International Relations with a monograph on civil society participation in the Sustainable Development Goals processes at the UN (2016). She is co-founder and currently executive director of Gestos – HIV and AIDS, Communication and Gender, – a non-governmental organization created in 1993, in Recife, Brazil and since 2001, she has been engaged in United Nations monitoring processes by publicizing the Declaration of Commitment on HIV and AIDS. She was nominated for the High Level Task Force for ICPD and Beyond, established to help galvanize political will to advance the SRHR agenda in the Post-2015 processes and has represented civil society in the official Brazilian national delegations to the United Nations high level meetings since UNGASS-AIDS 2001, including for the past eight years into the CSW, MDG, CPD and SDG's delegations. She has lead the campaign Women Won’t Wait – Stop AIDS & Violence Against Women & Girls in LAC from 2009 up to now, and is the Regional Director of LACCASO, the Latin American and Caribbean Council of AIDS Organizations,. She served in many international boards, like the ITPC, International Preparedness Coalition on Treatment and from 2012 to 2014, she represented the NGOs from LAC at the Program Coordinating Board of UNAIDS. At the national level she is board member of the Action AID; coordinates the campaign for Financial Transaction Taxes and is director of the Brazilian Association of NGOs . She has struggle to articulate a bold strategic vision among leaders and civil society advocates to implement the 2030 Agenda for Sustainable Development at global and national levels. Notwithstanding, Ms Nilo has an interdisciplinary professional career for she has also worked as film director and screenwriter.
C-Net, Belize Contact Erika Erika is a transgender woman openly living with HIV. She is presently the Executive Director of the Collaborative Network of Persons Living with HIV in Belize (C-NET+). She volunteers in national and regional bodies like the Belize CCM, REDCA+, REDLA+, REDLACTRANS, CRN+ and GNP+ which have provided her the perspective of team work and have given her a vast network. She is a social work student at the University of Belize and has recently completed the LGBT Health Research Diploma Course at the University of Pittsburgh. Her life experiences as a sex worker, former drug user, transgender woman and person living with HIV have enriched her perspectives to work with communities and facilitate her interaction and communication with various groups. Her experience in political dialogue like the OAS has also given her the experience to be able to work with groups with opposing points of views that are still able to strategize to reach consensus.
GNBPH, US Contact Marsha Marsha Martin has over 25 years of HIV experience at the national and local levels. She is currently the Director/Coordinator of the Global Network of Black People working in HIV, a global network designed to expand and enhance the engagement and participation of Black people in the HIV response worldwide. She also serves as chair of the California HIV Research Program, CHRP, and Health Policy consultant, Healthy Churches 2020 a faith-based educational program of the Balm in Gilead. She is the former Director of the Urban Coalition for HIV/AIDS Prevention Services (UCHAPS), a coalition of health departments and community members from ten urban jurisdictions (Atlanta, Baltimore, Chicago, Fort Lauderdale, Houston, Los Angeles County, New York City, Philadelphia, San Francisco and Washington, DC) responsible for planning and implementation of high impact HIV prevention services and surveillance programs. Previously, Marsha led Get Screened Oakland, a municipal HIV testing initiative in the Office of Oakland Mayor Ronald V. Dellums designed to dramatically scale up HIV testing and treatment programs. Dr. Martin also served as the Director of Washington, DC’s Administration for HIV Policy and Programs where she launched and coordinated the first citywide HIV testing program in the US. From 1997 to 2001, Marsha was the special assistant on HIV/AIDS policy to Secretary Donna Shalala at the US Department of Health and Human Services. Dr. Martin represented the HHS Secretary at the PCB. She holds a Doctorate in Social Work, a BA in Psychology and is an ordained interfaith minister.
Canadian Aboriginal AIDS Network, Canada Contact Trevor Trevor is a 50-year old man from the Mississaugas of the New Credit First Nation near Toronto, Canada with mixed English and Ojibwe heritage. Diagnosed with HIV in 1990, Trevor turned to his community and the Indigenous HIV & AIDS movement for support and became an activist, volunteer and consultant at the local, national and regional levels. He is now the Coordinator for the International Indigenous Working Group on HIV & AIDS (IIWGHA) for its host organization, the Canadian Aboriginal AIDS Network (CAAN). Trevor is one of two Liaisons for Aboriginal People living with HIV & AIDS (APHA Liaison) at CAAN. For the past 6 years, Trevor has been a board member of the Canadian AIDS Treatment Information Exchange (CATIE).