The UNAIDS is the first UN programme to have civil society formally represented on its governing body. The NGO Delegation to the UNAIDS Program Coordinating Board (PCB) has three roles:
- Participating objectively and independently in the workings and decision-making of the PCB
- Undertaking various forms of proactive and informed advocacy within the structures and processes of the PCB;
- Enhancing the transparency and accountability of relevant PCB decision-making and policy-setting, helping to meet requirements for upwards accountability (towards the PCB and other delegations) and downwards accountability (towards the people, communities and constituencies affected by HIV)
Civil Society Representation on the UNAIDS Programme Coordinating Board
- Musah El-nasoor Lumumba, Uganda Youth Coalition on Adolescent Sexual Reproductive Health Rights and HIV (CYSRA), Uganda
Asia and the Pacific
Latin America and the Caribbean
Uganda Youth Coalition on Adolescent Sexual Reproductive Health rights and HIV (CYSCRA), Uganda Contact Musah Musah Lumumba El-nasoor is a 29 year old youth leader and the national co-ordinator of Uganda Youth Coalition on Adolescent Sexual Reproductive Health Rights and HIV (CYSRA-Uganda), a coalition of 15 youth organizations and networks working together to sharpen adolescent components in national HIV and SRHR responses. He is also a member of the African Young Positives Network (AY+), The PACT and an Advisor on HIV Treatment and SRHR within the global network of young people living with HIV (Y+). Musah also serves as the African Youth advisor to the Point 7 delegation to the Global Fund (2014-2016) Musah holds a Bachelor degree in Clinical Medicine and Community Health, with a post graduate in Health Services Management. While in clinical practice, Musah was more inclined to HIV treatment, safe male circumcision, and contraception for young people.
Rumah Cemara, Indonesia Contact Aditia Aditia Taslim Lim is the Executive Director of Rumah Cemara. As a person who uses drugs, his experience and knowledge allowed him to contribute to his organization’s community drug treatment center in developing coping skills and dealing with psycho-social issues. He has also become one of the initiators in the development of innovative approach to ending stigma and discrimination through the use of sports such as football, boxing and running in Indonesia. Aditia has been living with HIV for 16 years now and he found out his HIV status when he was 17 years old while living in another country on his own.
HIV Alliance India, India Contact Sonal Sonal grew to the level of Chief Executive of Alliance India in October 2016, after serving in capacity of Director Programmes and Policy in the organisation for nine years. With three decades of experience in sexual health and development, Sonal guides Alliance India’s mission of community action for ending AIDS with a lot of programmatic experience and management smartness. Before joining Alliance India, Sonal was Challenge Fund Manager in the DFID programme that led to many path breaking interventions in India including bringing oral substitution therapy for people who inject drugs. Prior to that she worked with organisations in India including NACO, Gujarat SACS, CHETNA and SEWA, as well as with the Pacific Institute of Women’s Health in Los Angeles, USA. Sonal has an MSW from the Faculty of Social Work, Vadodara, Gujarat. In a stride to continue learning, she completed her International Masters in Practicing Management from McGill and is pursuing Masters in Science in International Management from Lancaster, UK.
AIDS Action Europe, Germany Contact Ferenc Ferenc is an HIV and human rights activist from Hungary, currently based in Berlin, Germany. He started working in the field of HIV in 2007, first as a volunteer for a self-support group and a VCT campaign. In 2008 he joined the team of the Hungarian Civil Liberties Union (HCLU) where he was head of the HIV/AIDS Program for 8 years, also working on LGBT-issues. He also became very active at the European level; he was a member of the Steering Committee of AIDS Action Europe (AAE), a network of over 440 NGOs in Europe and Central Asia between 2009 and 2014. Ferenc currently works as project manager at AAE. He is working at the European advocacy level on projects on issues of affordability of medications, early diagnosis and treatment, and access to prevention, treatment and care programs focusing on key populations, in particular men who have sex with men (MSM) and migrants in irregular situations. He is a treatment advocate and member of the European AIDS Treatment Group (EATG) and he is one of the founders of the Network of Low HIV-Prevalence Countries in Central and Southeast Europe (NeLP). He is also a trainer and has delivered trainings on treatment literacy and advocacy, and mental health and HIV in Central and Southeast Europe.
Gestos, Brazil Contact Alessandra Alessandra Nilo holds a Bachelors degree in Journalism and Mass Communication, has a specialization in Communication and Health and holds post-graduation studies on International Relations with a monograph on civil society participation in the Sustainable Development Goals processes at the UN (2016). She is co-founder and currently executive director of Gestos – HIV and AIDS, Communication and Gender, – a non-governmental organization created in 1993, in Recife, Brazil and since 2001, she has been engaged in United Nations monitoring processes by publicizing the Declaration of Commitment on HIV and AIDS. She was nominated for the High Level Task Force for ICPD and Beyond, established to help galvanize political will to advance the SRHR agenda in the Post-2015 processes and has represented civil society in the official Brazilian national delegations to the United Nations high level meetings since UNGASS-AIDS 2001, including for the past eight years into the CSW, MDG, CPD and SDG's delegations. She has lead the campaign Women Won’t Wait – Stop AIDS & Violence Against Women & Girls in LAC from 2009 up to now, and is the Regional Director of LACCASO, the Latin American and Caribbean Council of AIDS Organizations,. She served in many international boards, like the ITPC, International Preparedness Coalition on Treatment and from 2012 to 2014, she represented the NGOs from LAC at the Program Coordinating Board of UNAIDS. At the national level she is board member of the Action AID; coordinates the campaign for Financial Transaction Taxes and is director of the Brazilian Association of NGOs . She has struggle to articulate a bold strategic vision among leaders and civil society advocates to implement the 2030 Agenda for Sustainable Development at global and national levels. Notwithstanding, Ms Nilo has an interdisciplinary professional career for she has also worked as film director and screenwriter.
GNBPH, US Contact Marsha Marsha Martin has over 25 years of HIV experience at the national and local levels. She is currently the Director/Coordinator of the Global Network of Black People working in HIV, a global network designed to expand and enhance the engagement and participation of Black people in the HIV response worldwide. She also serves as chair of the California HIV Research Program, CHRP, and Health Policy consultant, Healthy Churches 2020 a faith-based educational program of the Balm in Gilead. She is the former Director of the Urban Coalition for HIV/AIDS Prevention Services (UCHAPS), a coalition of health departments and community members from ten urban jurisdictions (Atlanta, Baltimore, Chicago, Fort Lauderdale, Houston, Los Angeles County, New York City, Philadelphia, San Francisco and Washington, DC) responsible for planning and implementation of high impact HIV prevention services and surveillance programs. Previously, Marsha led Get Screened Oakland, a municipal HIV testing initiative in the Office of Oakland Mayor Ronald V. Dellums designed to dramatically scale up HIV testing and treatment programs. Dr. Martin also served as the Director of Washington, DC’s Administration for HIV Policy and Programs where she launched and coordinated the first citywide HIV testing program in the US. From 1997 to 2001, Marsha was the special assistant on HIV/AIDS policy to Secretary Donna Shalala at the US Department of Health and Human Services. Dr. Martin represented the HHS Secretary at the PCB. She holds a Doctorate in Social Work, a BA in Psychology and is an ordained interfaith minister.
Canadian Aboriginal AIDS Network, Canada Contact Trevor Trevor is a 50-year old man from the Mississaugas of the New Credit First Nation near Toronto, Canada with mixed English and Ojibwe heritage. Diagnosed with HIV in 1990, Trevor turned to his community and the Indigenous HIV & AIDS movement for support and became an activist, volunteer and consultant at the local, national and regional levels. He is now the Coordinator for the International Indigenous Working Group on HIV & AIDS (IIWGHA) for its host organization, the Canadian Aboriginal AIDS Network (CAAN). Trevor is one of two Liaisons for Aboriginal People living with HIV & AIDS (APHA Liaison) at CAAN. For the past 6 years, Trevor has been a board member of the Canadian AIDS Treatment Information Exchange (CATIE).